6th Orphan Drugs and Rare Diseases Europe 2017

from May 15th 2017 to May 16th 2017
08:30 to 08:30


SMi's 6th annual Orphan Drugs and Rare Diseases event will be taking place in Europe's largest pharmaceutical market, Berlin on 15th – 16th May 2017. 

Rare diseases have long been under researched, with many unaware that such conditions even existed. However recent advancements within the orphan drugs landscape has resulted in a significant growth, with the market expected to reach a record breaking USD 191 billion by 2019.  Conversely, there cannot be success without challenges. 

With Germany currently possessing one of the toughest pricing mechanisms and policies in Europe, this two day conference will endeavor to establish an interactive platform exploring how payers, pharma, biotech and patient organisations are preparing to participate and leverage the rapidly growing orphan drugs and rare diseases market. 


-Massimo Bertelli, Country Manager, Aegerion Pharmaceuticals 

-Alastair Kent, Market Research Manager, Institute of Pharmaceutical Research and Technology 

-Richard Porter, Chief Operating Officer, Therachon AG 

-Peter Ramge, Senior Global Product Manager, Novo Nordisk 

-Tony Zbeidy, General Manager Middle East and North Africa, Orphan Europe 

-Jama Nateqi, Co-Founder, SYMPTOMA 

-Cecile De Coster, Associate Directory, Regulatory Affairs, Alexion Pharma GmbH  

- Carol McCudden, Patient Ambassador, ATAXIA UK


-Exchange knowledge and best practices on all relevant issues related to the rare disease environment 

-Learn strategies on defending the pricing of orphan products and how to establish a foundation for reimbursement 

-Hear Alexion discuss criteria, comparison and case studies for US and EU regulatory landscapes 

-Circulate the most relevant findings within the rare disease environment to all relevant stakeholders 

-Listen to global case studies from Aegerion and Orphan Europe 

-Discover a new business model for developing rare diseases treatments  

Register at www.orphandrugs-event.com/evvnt


Booking: https://go.evvnt.com/80090-1


Book by 31 Jan: GBP 1099,

Book 28 Feb: GBP 1299,

Book 31 Mar: GBP 1399,

Standard Price: GBP 1499

Speakers: Aegerion Pharmaceuticals, Institute of Pharmaceutical Research and Technology, Therachon AG, Novo Nordisk, Orphan Europe, SYMPTOMA, Alexion Pharma GmbH, ATAXIA UK and many more

Time: 8:30 am to 5:30 pm

Venue details: Crowne Plaza Berlin, Potsdamer Platz, Hallesche Str. 10, Berlin, 10963, Germany