We are the proud grandparents of an adorable little girl, Myla Love
Myla Love will be 2 years old on March 10, and she lives with her adoring parents, our youngest daughter Mel, and her lovely husband Stef, in Douarnenez (Finistere)
Myla Love was born with a rare syndrome, M-CM, in fact, it's so rare, there's only 3 other cases known in France, and 150 in total in the world. It's called M-CM, and it was only 'discovered' in 2007, so really recent. There's not much known about this rare syndrome, although what is known is that it causes physical & mental delays/disabilities.
Our daughter, who is a journalist, has decided to start an 'association', M-CM France in France, to create more awareness & understanding of M-CM,
Here's the website she has created: http://m-cmfrance.com
She has also started writing a blog: http://www.mamanactive.fr
Unfortunately for some of you, it is all in French, but we are trying to find the time to translate it all into English, though this can take a moment......
on Saturday the 28th February it is International Rare Disease Day, and it will be a special awareness & fundraising day with a sponsored run, live concerts etc, organised by M-CM France.
You are all more than welcome to join in for this good cause, and to have a lovely time doing so!
More info & details, please contact our Mel, she is bi-lingual, so your emails can be send in English of course @ contact@m-cmfrance.com
Also, as we would like to make as much publicity as possible for M-CM France, we would really appreciate if you could join in, and mention, or share this, on your social media
Thanking you in advance for your interest, enthusiasm & support,
warm regards,
Ronan & Andrea