Arnold-Chiari / Ehlers-Danlos /

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HelloI was recently contacted by an expat woman with a daughter having an Arnold-Chiari Malformation and an Ehlers-Danlos Syndrome because I posted some stuff about in the past. (they are in Geneva)Even if those are very rare, I'm trying to find if there's other expatriate that could be concerned, and would like to get in touch with other people speaking English and having one of those conditions.So if you know about people that could be interested, don't hesitate.. I think it's important that people with such conditions now other people in Switzerland and can exchange information and, why not, befriend and meet.Thank you very much.Best,Bertrand - Geneva(yep, I used to be on the englishforum switzerland)


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